This is a guest post written by Cayla Lemire, a friend and former patient. Over my 27 years of being alive, the healthcare system has been a part of my life since I was diagnosed at 9 months old. Since then, the hospital has been my second home, while the staff throughout it, has been […]
In my practice I take care of children who are vulnerable to respiratory illness. It is especially critical for the parents of these children to make sure that their children are taking their breathing medications and doing their treatment regimens so that they are in the best possible shape if they have a viral illness, with EV-D68 or any other virus. Specifically:
Children with asthma who are on controller medications should have started their prescribed controllers if they have slacked off over the summer (we did with my four year old). Also make sure there you have an adequate supply of albuterol.
Children with cystic fibrosis should be doing airway clearance treatments and taking aerosolized treatments regularly as prescribed.
Children with neuromuscular disorders such as Duchenne muscular dystrophy, spinal muscular atrophy, and other disorders should be using cough assist regularly, or at least their parents should verify that all treatment equipment (oximeters, cough assist devices, VESTs) are in good working order.
I gave a talk last fall at a roundtable organized by the Jett Foundation for parents of boys younger than ten with muscular dystrophy. If you are unfamiliar with this disorder, it is characterized by muscle weakness which is progressive over time. It is due to a mutation in the gene encoding dystrophin, a protein which […]